Brain Fog - Blog Posts
I don't have a scooter attachment or any motor attachment for my wheelchair, but I sometimes drive fast bc I am able to and I love it. I'm genuinely considering getting a "ringing bell" (idk I forgot the English word for it) and/or a "honking thing". Bc people walk sooo slow and I'm zooming ahead and most people are completely unaware of their surroundings
For the Danes or Danish speaking individuals, the words I'm thinking of are "ringeklokke og båthorn" :D
Omg a text post
Went to write a story, been a looooong time since I was ready to go throw it down with the keys and here I am.
So it's about Naruto, the series not the character. 7 pages in and I have not introduced the main character... Which I don't even know if he is going to be the main character. Is the center of the story automatically a main character?
Gai and Yamato are there goofing around. Tsunade the usual pretending to not give a shit badass, who actually gives a lot of shits. To herself and everyone around her.
Why am I even writing this down?
7 pages 2 chapters in and I have no idea where the story is going...
And I enjoy it so hard.
Welcome to the Premium Autoimmune Package
Hi. I’m not new to being sick, but I’m very new to being taken seriously. That only happened because my body is currently collapsing fast enough that doctors couldn’t look away anymore.
I live with overlapping autoimmune diseases, but recently I got upgraded to the “CNS involvement” tier. Think brain inflammation, spinal pressure, hallucinations, cognitive fog, and one healing spinal fracture I didn’t even realize I had. I thought it was just my usual back pain. Turns out it was… a broken bone.
I’ve been hospitalized twice in the last month. A spinal tap showed my brain pressure was way too high, 32 cmH₂O, where normal is typically between 10 and 20. My spinal fluid was full of immune cells , 40% of them, when 0–5% is normal. My MRI has white matter lesions. It’s not MS. It likely neuropsychiatric lupus. It might be a weird intersection of multiple things. No one’s totally sure yet.
What I do know is I’m on IVIG now, possibly headed for a brain shunt, and trying to stay out of the hospital. Also, I’m trans and had to pause testosterone because of clot risks from treatment. No, there’s no workaround. Yes, it sucks.
This blog is my space to document what it’s like to be visibly declining after years of being invisibly sick. No pity required. Just here to tell the truth about what it’s like to have the Premium Autoimmune Package, full access unlocked.
Current Working diagnoses:
• Neuropsychiatric Lupus (NPSLE)
• Myasthenia Gravis
• Psoriatic Arthritis
• Intracranial Hypertension
• Ehlers-Danlos Syndrome
Out of my ADHD medication rn and I’m trying to work and oh my god this is impossible. I feel like the gummy bears from that fucking 2000s song are having a party in my skull and they’re using my grey matter as a bean bag chair and they keep pouring Hennessy shots into my brain wrinkles
*forgets to message back* *forgets to check notifications* *forgets to look through bookmarks* *forgets to check reminders* *forgets to check out [insert content] that i said i would* *forgets to take my phone off do not disturb* *forgets to
Aggressive Elder: Kids these days have no common sense! This generation has no critical thinking skills!
Me(19 and suffering from cognitive dysfunctions such as heavy brain fog, delayed reactions, memory issues, etc.):
Yes.
anyone else use drafts like a todo list
i have so many drafts that just have like one or two words where i was like omg gotta post about this and then moved on and i dont really know what i was trying to say !!
pls communicate with urself better ty bee
(wakes up) I should be writing
(in class) I should be writing
(having lunch) I should be writing
(waiting for the bus) I should be writing
(at home) I should be doing my homework
(not doing homework) I should be writing
(opens laptop)
(stares at empty Obsidian page)
(thinks about a Concept for some time)
(scrolls through social media)
(gets ready for bed)
(in bed) I should be writi
Ena dream bbq has infected my brain
I’m cooked💔💔
CHRONIC PAIN GANG 💪
RHEUMATOID ARTHRITIS GANG 💪
Happy disability pride month to all my physically disabled people! Wether you:
Are chronically ill
Are in chronic pain
Have reduced mobility
Need a wheelchair for whatever reason
Wish you had a wheelchair but can't get one
Have a tremor
Are a spoonie
Have reduced visibility or are blind
Have reduced hearing or are deaf/Deaf
Have an autoimmune disorder
Have a skin condition
Have something else physically wrong with you but you just can't figure out what
Have some other kind of physical disability that I didn't think of/add here (feel free to put in the tags if you are comfortable doing so)
Don't let the world forget about us this July! We are here, we aren't going away any time soon!
[image ID: the updated disability pride flag. A dark grey background with 5 stripes on it, going diagonally from the top left corner to the bottom right corner. From top to bottom the stripes are coloured: green, blue, white, yellow, red. End ID]
(yes, mentally disabled people also fall under disability pride month but this post is meant to celebrate physically disabled people, please don't derail)